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初級保健 2019：患有醫療複雜性的兒童：全國性護理模式的足智多謀的綜合計劃 - Jamal A Omer - 法赫德國王醫療城

賈馬爾·奧馬爾

具有科學複雜性（CMC）的兒童具有科學脆弱性和廣泛的護理願望，但當前現有的醫療保健方式並非沒有問題。 CMC 也可能患有先天性或後天性多機疾病、具有明顯實際損傷的嚴重神經系統疾病和/或日常居住活動的技術依賴。儘管這些兒童的健康狀況可能較差，並對家庭和健康設備造成巨大的社會經濟負擔，但很少有適當設計的臨床項目、服務和研究工作致力於解決他們的困難護理問題，減輕家庭和健身設備的負擔，或提高整體健康水準。

最近，患有醫療複雜性 (CMC) 的青少年及其家庭的需求已成為健身護理提供者、政策制定者、付款人和家庭之間高度關注和對話的主題。培養 CMC 的家庭通常喜歡不協調、不一致且難以駕馭的複雜系統。本文從家庭角度出發，包括 CMC 定義的對話、為具有獨特醫療保健願望的兒童和青少年 (CYSHCN) 和 CMC 提供幫助的規則和應用程序記錄、與獲得令人驚嘆的、低成本護理，以及為照顧孩子並協助他們過渡到成人醫療保健的家庭提供更多幫助和服務的可能性。

The burden of a couple of persistent illnesses is putting stress on any fitness care machine. As a small however great populace with large necessities, these patients gift a undertaking to healthcare providers who're predicted to offer holistic care and control complex problems regularly with a paucity of studies, offerings, and supports. Patients with medical complexity and their families need extra sight and assist; however, the fitness care system, community and social offerings do no longer constantly recognize their calls for help or help. Our guidelines are made for fitness care structures and issuer to initiate a precious provider to such organization of population to make certain high skilled lifestyles. Our comprehensive care application with its research initiative for this valued population targets to identify and understand the modern-day reputation of complicated pediatric care in Saudi Arabia inclusive of the prevalence of kids with scientific complexity and burden on our health device in addition to their households and to perform a properly-dependent model of care with right offerings as a way to allow better expertise of this population and inventive planning of their good sized and complicated care inside our fitness device.

CMC are a subset of CYSHCN, a population defined as “those who have or are at increased hazard for a continual bodily, developmental, behavioral, or emotional condition and who additionally require health and related services of a type or amount beyond that required through youngsters commonly.” There are a ramification of phrases and definitions used to explain CMC; for the purposes of this text, we use the following: CMC are folks that are “clinically diagnosed via at least 1 continual circumstance resulting in high circle of relatives-diagnosed carrier need, scientific equipment addressing purposeful problems, more than one subspecialist involvement, and extended health service use.” Examples of CMC consist of those with cystic fibrosis, severe congenital coronary heart defects, or complicated metabolic problems.

Meeting the person and collective desires of CMC (who, by means of using the above definition, are predicted to constitute 3.2% of CYSHCN and ∼0.4% of all youngsters within the United States) need to be a shared priority of fitness care shipping structures, payers, the health policy research community, and society as a whole. The revel in of CMC in their houses, faculties, and groups is unique, and each family sees their toddler with scientific complexity as a man or woman first and major, that's why the authors promote and use person-first language. Families need vendors, payers, and policy makers to remember the fact that every infant must always be visible as a man or woman person first and predominant.

CMC 的數量不斷增加，許多危及生命的疾病和先天性異常的治癒方法和治療方法，這些疾病和先天性異常在過去普遍致命，造就了新一代兒童，他們的生存往往早於指導治療的臨床證據和過去的情況。儘管其數量仍然很少，但每個網路兒科護理機構、學校、禮拜堂和大家庭都可能由 CMC 組成。